article_1708731_1776429574 1776429574 Kıbrıs Ruh Sağlığı Enstitüsü Cyprus Turkish Journal of Psychiatry and Psychology KTPP Dergisi 1302-7840 03 28 2026 8 1 Pınar Algedik HALİÇ ÜNİVERSİTESİ https://orcid.org/0000-0002-9617-6224 Orhan Kocaman Alanya Alaaddin Keykubat University Faculty of Medicine , Department of Child and Adolescent Psychiatry https://orcid.org/0000-0002-7504-5604 Amaç: Bu çalışma, Otizm Spektrum Bozukluğu (OSB) ile ilgili çevrimiçi hasta eğitimi materyallerinin okunabilirliğini değerlendirmeyi ve bu kaynakların ebeveynler için ne kadar anlaşılır olduğunu belirlemeyi amaçladı. Yöntem: 26 Ocak 2025’te, Google arama motoru kullanılarak “otizm,” “atipik otizm,” “Asperger sendromu,” “yaygın gelişimsel bozukluk” ve “otizm spektrum bozukluğu” anahtar kelimeleriyle İngilizce hasta eğitimi materyalleri tespit edildi. Önceden belirlenmiş dahil etme kriterlerine göre 132 web sitesi seçildi ve Profesyonel Dernek, Klinik Uygulama ve Genel Sağlık Bilgisi olmak üzere üç gruba ayrıldı. Okunabilirlik, Flesch Okunabilirlik Kolaylığı (FRE), Flesch-Kincaid Sınıf Düzeyi (FKGL), Gunning Sis İndeksi (GFI), Gobbledygook Basit Ölçümü (SMOG), Coleman–Liau İndeksi (CLI) ve Otomatik Okunabilirlik İndeksi (ARI) olmak üzere altı standart ölçümle değerlendirildi. Bulgular: Analiz edilen 132 materyalin %67,4’ü Genel Sağlık Bilgisi, %17,4’ü Profesyonel Dernek ve %15,2’si Klinik Uygulama kaynaklarından oluşuyordu. Ortalama FRE skoru 30,2 ± 16,2, FKGL 14,3 ± 3,7, GFI 17,0 ± 3,8, SMOG 13,0 ± 2,6, CLI 15,7 ± 2,4 ve ARI 14,3 ± 4,1 idi. Üç web sitesi kategorisi arasında istatistiksel olarak anlamlı fark bulunmadı (p > 0,05). Sonuç: Otizmle ilgili çevrimiçi hasta eğitimi materyalleri, çoğu okuyucunun anlayabileceğinden önemli ölçüde daha yüksek bir okuma seviyesinde yazılmıştır ve bu durum ebeveynlerin kritik bilgilere erişimini sınırlayabilir. Daha net, daha erişilebilir ve sağlık okuryazarlığına uygun materyaller geliştirmek, otizmli bireylerde erken tanı ve müdahale sonuçlarını iyileştirmek için gereklidir. 03 28 2026 10 28 2025 82 90 Destek alınmamıştır 10.35365/ctjpp.26.1.11 https://dergipark.org.tr/tr/doi/10.35365/ctjpp.26.1.11 Affairs, A. complete list of the members of the A. H. C. on H. L. and the members and staff of the C. on S. (1999). Health literacy report of the council on scientific affairs. JAMA, 281(6), 552–557. https://doi.org/10.1001/jama.281.6.552. Andreassen, H. K., Bujnowska-Fedak, M. M., Chronaki, C. E., Dumitru, R. C., Pudule, I., Santana, S., Voss, H., & Wynn, R. (2007). European citizens’ use of E-health services: A study of seven countries. BMC Public Health, 7(1), 53. https://doi.org/10.1186/1471-2458-7-53. Ballonoff Suleiman, A., Lin, J. S., & Constantine, N. A. (2016). Readability of Educational Materials to Support Parent Sexual Communication with Their Children and Adolescents. Journal of Health Communication, 21(5), 534–543. https://doi.org/10.1080/10810730.2015.1103334. Berger, M., Wagner, T. H., & Baker, L. C. (2005). Internet use and stigmatized illness. Social Science & Medicine, 61(8), 1821–1827. https://doi.org/10.1016/j.socscimed.2005.03.025. Coleman, M., & Liau, T. L. (1975). A computer readability formula designed for machine scoring. Journal of Applied Psychology, 60(2), 283–284. https://doi.org/10.1037/h0076540. Couper, M. P., Singer, E., Levin, C. A., Fowler, F. J., Fagerlin, A., & Zikmund-Fisher, B. J. (2010). Use of the Internet and Ratings of Information Sources for Medical Decisions: Results from the DECISIONS Survey. Medical Decision Making, 30(5_suppl), 106–114. https://doi.org/10.1177/0272989X10377661. Dempster, M., Howell, D., & McCorry, N. K. (2015). Illness perceptions and coping in physical health conditions: A meta-analysis. Journal of Psychosomatic Research, 79(6), 506–513. https://doi.org/10.1016/j.jpsychores.2015.10.006. Dickerson, C., & Sajeesh Kumar, M. (2016). Quality and Readability of Online Patient Education Information and the Parents Comprehension for Childhood Depression. Journal of Health & Medical Informatics, 07(01). https://doi.org/10.4172/2157-7420.1000214. Duğan, Ö. (2024). Violence in Health: An Analysis based on the Emotions of Youtube Viewers. Cyprus Turkish Journal of Psychiatry & Psychology, 6(3), 249–254. https://doi.org/10.35365/ctjpp.24.3.06. Duymaz, Y. K., Tekin, A. M., D’Haese, P., Şahin, Ş., Erkmen, B., Cırık, A. A., & Topsakal, V. (2023). Comprehensiveness of online sources for patient education on hereditary hearing impairment. Frontiers in Pediatrics, 11. https://doi.org/10.3389/fped.2023.1147207. Flesch, R. (1948). A new readability yardstick. Journal of Applied Psychology, 32(3), 221–233. https://doi.org/10.1037/h0057532. Freda, M. C. (2005). The readability of American Academy of Pediatrics patient education brochures. Journal of Pediatric Health Care, 19(3), 151–156. https://doi.org/10.1016/j.pedhc.2005.01.013 GH, M. (1969). SMOG grading: A new readability formula. Journal of Reading, 12(8), 639–646. Ghanem, D., Covarrubias, O., Maxson, R., Sabharwal, S., & Shafiq, B. (2024). Readability of Trauma-related Patient Education Materials From the American Academy of Orthopaedic Surgeons and Orthopaedic Trauma Association Websites. Journal of the American Academy of Orthopaedic Surgeons. https://doi.org/10.5435/JAAOS-D-23-00449 Gunning Ralph. (1952). The Technique of Clear Writing. New York, NY, USA: McGraw-Hill. ISBN 9780070252066. Hansberry, D. R., Ramchand, T., Patel, S., Kraus, C., Jung, J., Agarwal, N., Gonzales, S. F., & Baker, S. R. (2014). Are we failing to communicate? Internet-based patient education materials and radiation safety. European Journal of Radiology, 83(9), 1698–1702. https://doi.org/10.1016/j.ejrad.2014.04.013 Hodges, H., Fealko, C., & Soares, N. (2020). Autism spectrum disorder: Definition, epidemiology, causes, and clinical evaluation. In Translational Pediatrics (Vol. 9). https://doi.org/10.21037/tp.2019.09.09 Huang, G., Fang, C. H., Agarwal, N., Bhagat, N., Eloy, J. A., & Langer, P. D. (2015). Assessment of Online Patient Education Materials From Major Ophthalmologic Associations. JAMA Ophthalmology, 133(4), 449. https://doi.org/10.1001/jamaophthalmol.2014.6104 King, M. M., Winton, A. S. W., & Adkins, A. D. (2003). Assessing the Readability of Mental Health Internet Brochures for Children and Adolescents. Journal of Child and Family Studies, 12(1), 91–99. https://doi.org/10.1023/A:1021362210470 Kubb, C., & Foran, H. M. (2020). Online Health Information Seeking by Parents for Their Children: Systematic Review and Agenda for Further Research. Journal of Medical Internet Research, 22(8), e19985. https://doi.org/10.2196/19985 Kummervold, P. E., Chronaki, C. E., Lausen, B., Prokosch, H.-U., Rasmussen, J., Santana, S., Staniszewski, A., & Wangberg, S. C. (2008). eHealth Trends in Europe 2005-2007: A Population-Based Survey. Journal of Medical Internet Research, 10(4), e42. https://doi.org/10.2196/jmir.1023 Kumrulu, S., & Bal, F. (2024). Investigation of the Relationship Between Attention Level and Reading Speed in Children. Cyprus Turkish Journal of Psychiatry & Psychology, 6(2), 126–136. https://doi.org/10.35365/ctjpp.24.2.03 Maenner, M. J., Warren, Z., Williams, A. R., Amoakohene, E., Bakian, A. V., Bilder, D. A., Durkin, M. S., Fitzgerald, R. T., Furnier, S. M., Hughes, M. M., Ladd-Acosta, C. M., McArthur, D., Pas, E. T., Salinas, A., Vehorn, A., Williams, S., Esler, A., Grzybowski, A., Hall-Lande, J., … Shaw, K. A. (2023). Prevalence and Characteristics of Autism Spectrum Disorder Among Children Aged 8 Years — Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2020. MMWR Surveillance Summaries, 72(2). https://doi.org/10.15585/mmwr.ss7202a1 Marinelli, S., Basile, G., & Zaami, S. (2022). Telemedicine, Telepsychiatry and COVID-19 Pandemic: Future Prospects for Global Health. Healthcare, 10(10), 2085. https://doi.org/10.3390/healthcare10102085 Neggers, Y. H. (2014). Increasing Prevalence, Changes in Diagnostic Criteria, and Nutritional Risk Factors for Autism Spectrum Disorders. ISRN Nutrition, 2014, 1–14. https://doi.org/10.1155/2014/514026 Pehora, C., Gajaria, N., Stoute, M., Fracassa, S., Serebale-O’Sullivan, R., & Matava, C. T. (2015). Are Parents Getting it Right? A Survey of Parents’ Internet Use for Children’s Health Care Information. Interactive Journal of Medical Research, 4(2), e12. https://doi.org/10.2196/ijmr.3790 Sharma, N., Tridimas, A., & Fitzsimmons, P. R. (2014). A Readability Assessment of Online Stroke Information. Journal of Stroke and Cerebrovascular Diseases, 23(6), 1362–1367. https://doi.org/10.1016/j.jstrokecerebrovasdis.2013.11.017 Singh, J. (1995). The readability of educational materials written for parents of children with attention-deficit hyperactivity disorder. Journal of Child and Family Studies, 4(2), 207–217. https://doi.org/10.1007/BF02234096 Smith, E. A., & Senter, R. J. (1967). Automated readability index. (AMRL-TR-66-220). Aerospace Medical Research Laboratories, Wright-Patterson Air Force Base, OH, USA, 1–14. The National Library of Medicine (MedlinePlus). (2022). How to write easy-to-read health materials. https://medlineplus.gov/pdf/health-education-materials-assessment-tool.pdf (Accessed on: February 20, 2025) Turnock, A., Langley, K., & Jones, C. R. G. (2022). Understanding Stigma in Autism: A Narrative Review and Theoretical Model. Autism in Adulthood, 4(1), 76–91. https://doi.org/10.1089/aut.2021.0005 Yegen, C., Çeçen, A. F., & İnce, V. (2025). Liver Transplant News and Biases: A Ten-Year Review of Turkish Media. Cyprus Turkish Journal of Psychiatry & Psychology, 7(2), 194–201. https://doi.org/10.35365/ctjpp.25.2.10 Yılmaz, D., & Sezgin, M. (2023). Persuasive Solutions for Addressing the Impact of Internet Media on Childhood Vaccine Rejection. Cyprus Turkish Journal of Psychiatry and Psychology, 5(4). https://doi.org/10.35365/ctjpp.23.4.08